What is Spinal Muscular Atrophy?
Spinal Muscular Atrophy (SMA) is a rare genetic disorder. The people affected by SMA lose a specific type of nerve cell (a gene, SMN1 gene) in their spinal cord which is concerned with the muscular movements. This condition weakens the muscles, thereby leading to malfunctioning of the muscles. There are primarily 4 types of SMA. The symptoms for the type of SMA Mithra has, appear between ages 6 and 12 months. In this type, the infant experiences feeding and breathing problems, cannot stand or walk independently but can sit without support. Most babies affected by this type of SMA need a One-Time Gene Replacement Therapy before the child turns two because after which the child may face a lot more life threatening complications.
Word from Mr. K Satheesh Kumar, father of Mithra
I am K Satheesh Kumar father of K S Mithra. My daughter Mithra is affected by a rare genetic disorder Spinal Muscular Atrophy. The cost of the treatment for this disorder is Rs. 16 Crores. I hereby by request every soul who is reading this to help to Save our Child by donating Rs.10/- to Care and Welfare’s Ten Rupees Campaign and spread the word. Every contribution of yours matters to us for our baby Mithra.